Difference between revisions of "Main Page"

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<font size="+1"><center>[[PERFUSE SCAD Registry Portal Goals|Welcome! What are the goals of the iSCAD Registry Portal?]] </center></font>
 
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<center>'''To enroll a patient, click the button below.'''</center>
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[https://iscadregistry.bidmc.org/index.php?title=Special:UserLogin&returnto=Investigator:Main+Page If you are an Investigator, click here to log in!]
<center>[[File:ISCAD_Enroll_Button.png|class=resize|350px|link=https://redcap.bidmc.harvard.edu/redcap/surveys/?s=XNXPD8RATX]]</center>
 
  
=='''REDCap Quick Links==
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=='''Mission Statement==
<ul>
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The mission of the International SCAD Registry is to develop and maintain an independent, quality data repository to advance the pace and breadth of SCAD research around the world, toward the common goals of improving patient diagnosis and outcomes and accelerating scientific discovery.
<li><font size="-6">[https://redcap.bidmc.harvard.edu/redcap/surveys/?s=NW7Y8N79LL Subject Discontinuation Form]</font></li>
 
<li><font size="-6">[https://redcap.bidmc.harvard.edu/redcap/surveys/?s=PETF84MHEF SCAD Recurrence Form]</font></li>
 
</ul>
 
  
=='''Registry Documents Quick Links==
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=='''Vision Statement==
<ul>
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The vision of the International SCAD Registry is a robust collaboration of SCAD researchers around the globe who employ iSCAD’s continuously sourced, adequately powered data to assess outcomes and develop best practices and clinical guidelines for the ultimate goal of preventing SCAD or its recurrence.
<li>[https://iscadregistry.bidmc.org/images/0/00/ISCAD_Baseline_Clinical_Case_Report_Form_V29.pdf Baseline Case Report Form]</li>
 
<li>[https://iscadregistry.bidmc.org/images/c/c5/IScad_Event_Form_V8.pdf Event Form]</li>
 
<li>[https://iscadregistry.bidmc.org/images/a/a8/IScad_Follow_Up_Case_Report_V21.pdf Follow Up Case Report Form]</li>
 
</ul>
 
  
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=='''SCAD Alliance==
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SCAD Alliance is a unique organization with an integrated approach to the challenges facing spontaneous coronary artery dissection, or SCAD, patients and those who care about them. Our four-leaf “lucky” heart logo represents the torn artery we must overcome, supported by family, health partners, and researchers. With a focus on collaboration, SCAD Alliance has incorporated the many disciplines that play a role in researching spontaneous coronary artery dissection and caring for patients. We have crafted a team whose members are expert in the fields of cardiology, vascular disease, clinical psychology, connective tissue disorders, obstetrics/gynecology, endocrinology, and genetics. Founded in November 2013, our name says it all: SCAD Alliance.
 
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=='''Active Sites==
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* Cleveland Clinic
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* Emory
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* Intermountain
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* Johns Hopkins
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* Kaiser
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* Mass General
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* Mt. Sinai
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* Ohio State
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* St. Lukes
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* University of Colorado
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* University of Michigan
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* UVA
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* Vanderbilt
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* Washington University
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* Columbia University
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* NYU Langone
  
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<center><span style="font-size:30px; padding-bottom:0px;">'''[[Enrollment Updates|Top Enrollers]]'''</span><br><span style="font-size:15px; padding-bottom:0px;">As of June 2, 2017</span></center>
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<center><span style="font-size:110%;">'''Enrollment Update'''</span><hr style="margin:0px;"><span style="font-size:15px; padding-bottom:0px;">As of November 27, 2017</span></center>
 
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<div>[[Image:Enrollmenticon.png|170px|center|class=resize|link=Enrollment Updates]]</div>
 
{| class="wikitable";
 
{| class="wikitable";
!style= "width: 180px; min-width: 180px; padding-left:15px; padding-right:15px; border:0px; text-align:center;"|[[Image:Blank3.png|140px|class=resize|link=]]
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!style= "padding:0px; border:0px; text-align:left;"|'''Enrolled Patients:'''||<font color="#842627">'''0'''</font>
!style= "width: 180px; min-width: 180px; padding-left:15px; padding-right:15px; border:0px; text-align:center;"|[[Image:Blank3.png|140px|class=resize|link=]]
 
!style= "width: 180px; min-width: 180px; padding-left:15px; padding-right:15px; border:0px; text-align:center;"|[[Image:Blank3.png|140px|class=resize|link=]]
 
!style= "width: 180px; min-width: 180px; padding-left:15px; padding-right:15px; border:0px; text-align:center;"|[[Image:Blank3.png|140px|class=resize|link=]]
 
!style= "width: 180px; min-width: 180px; padding-left:15px; padding-right:15px; border:0px; text-align:center;"|[[Image:Blank3.png|140px|class=resize|link=]]
 
|-
 
!style= "padding-left:15px; padding-right:15px; border:0px; text-align:center;"|<span style="font-weight: 300;">'''Dr. Mauricio Concha'''</span>
 
!style= "padding-left:15px; padding-right:15px; border:0px; text-align:center;"|<span style="font-weight: 300;">'''Dr. Daniel Pallin'''</span>
 
!style= "padding-left:15px; padding-right:15px; border:0px; text-align:center;"|<span style="font-weight: 300;">'''Dr. Richard Hall'''</span>
 
!style= "padding-left:15px; padding-right:15px; border:0px; text-align:center;"|<span style="font-weight: 300;">'''Dr. Carol Clark'''</span>
 
!style= "padding-left:15px; padding-right:15px; border:0px; text-align:center;"|<span style="font-weight: 300;">'''Dr. Rishi Anand'''</span>
 
|-
 
!style= "padding-left:15px; padding-right:15px; border:0px; text-align:center;"|<span style="font-weight: 300; color: #842627;">21 patients</span>
 
!style= "padding-left:15px; padding-right:15px; border:0px; text-align:center;"|<span style="font-weight: 300; color: #842627;">15 patients</span>
 
!style= "padding-left:15px; padding-right:15px; border:0px; text-align:center;"|<span style="font-weight: 300; color: #842627;">15 patients</span>
 
!style= "padding-left:15px; padding-right:15px; border:0px; text-align:center;"|<span style="font-weight: 300; color: #842627;">14 patients</span>
 
!style= "padding-left:15px; padding-right:15px; border:0px; text-align:center;"|<span style="font-weight: 300; color: #842627;">10 patients</span>
 
 
|-
 
|-
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!style= "padding-left:0px; padding-right:15px; border:0px; text-align:left;"|'''Sites Activated:'''||<font color="#842627">'''0'''</font>
!style= "padding-left:15px; padding-right:15px; border:0px; text-align:center;"|<span style="font-weight: 300; font-size:14px;">Intercoastal Medical Group/Research, </span><span style="font-size:14px;">'''USA'''</span>
 
!style= "padding-left:15px; padding-right:15px; border:0px; text-align:center;"|<span style="font-weight: 300; font-size:14px;">Brigham and Women's Hospital, </span><span style="font-size:14px;">'''USA'''</span>
 
!style= "padding-left:15px; padding-right:15px; border:0px; text-align:center;"|<span style="font-weight: 300; font-size:14px;">University Hospitals of North Midlands NHS Trust, </span><span style="font-size:14px;">'''United Kingdom'''</span>
 
!style= "padding-left:15px; padding-right:15px; border:0px; text-align:center;"|<span style="font-weight: 300; font-size:14px;">Beaumont Health System, </span><span style="font-size:14px;">'''USA'''</span>
 
!style= "padding-left:15px; padding-right:15px; border:0px; text-align:center;"|<span style="font-weight: 300; font-size:14px;">Holy Cross Hospital, </span><span style="font-size:14px;">'''USA'''</span>
 
 
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<div style="text-align:center; background-color:#e4e4e4; border-top-right-radius:10px; border-top-left-radius:10px; padding-top:5px;"><font size="+1.5">'''Trial Videos'''</font>
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<center><span style="font-size:110%;">'''Save a Heart Infographic'''</span><hr style="margin:0px;">
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<div>[[Image:SCAD_infographic_cover.PNG|300px|center|class=resize|link={{server}}/images/6/65/SCAD_saveaheart.pdf]]</div>
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</center>
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</div>
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</div>
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<div class="left">
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<div style="text-align:center; background-color:#e4e4e4; border-top-right-radius:10px; border-top-left-radius:10px; padding-top:5px; padding-right:5px; padding-left:5px; margin-top:4px;"><font size="+1">'''SCAD in the News'''</font>
 
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{|
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{{#widget:Rssscad}}
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|style="border-style:solid; border-width: 0 0 1px 0; border-color:#BDBDBD;"|[[File:Gibson_Michael_circle.png|100px{{!}}link=]]
 
|style="border-style:solid; border-width: 0 0 1px 0; border-color:#BDBDBD;"|
 
[Dr. Michael Gibson presents: The Growing Importance of Missing Data and Patient Retention in Clinical Trials <br>(Part 1)]
 
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[Dr. Michael Gibson presents: The Growing Importance of Missing Data and Patient Retention in Clinical Trials <br>(Part 2)]
 
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[Dr. Michael Gibson presents: The Growing Importance of Missing Data and Patient Retention in Clinical Trials <br>(Part 3)]
 
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<div style="text-align:center; background-color:#e4e4e4; border-top-right-radius:10px; border-top-left-radius:10px; padding-top:5px; padding-right:5px; padding-left:5px;"><font size="+1">'''SCAD Alliance'''</font>
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<hr style="margin:0px;">
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<div style="height:300px; background-color:#e4e4e4; border-bottom-right-radius:10px; border-bottom-left-radius:10px; padding-right:5px; padding-left:5px; overflow:auto; margin-bottom:20px; text-align: left;">
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<center>{{#Widget:SCADAlliance}}</center>
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</div>
  
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<div style="text-align:center; background-color:#e4e4e4; border-top-right-radius:10px; border-top-left-radius:10px; padding-top:5px; padding-right:5px; padding-left:5px;"><font size="+1">'''Medical News'''</font>
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<center>{{#Widget:Abovethefold}}</center>
 
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Revision as of 12:27, 12 December 2018

If you are an Investigator, click here to log in!

Mission Statement

The mission of the International SCAD Registry is to develop and maintain an independent, quality data repository to advance the pace and breadth of SCAD research around the world, toward the common goals of improving patient diagnosis and outcomes and accelerating scientific discovery.

Vision Statement

The vision of the International SCAD Registry is a robust collaboration of SCAD researchers around the globe who employ iSCAD’s continuously sourced, adequately powered data to assess outcomes and develop best practices and clinical guidelines for the ultimate goal of preventing SCAD or its recurrence.

SCAD Alliance

SCAD Alliance is a unique organization with an integrated approach to the challenges facing spontaneous coronary artery dissection, or SCAD, patients and those who care about them. Our four-leaf “lucky” heart logo represents the torn artery we must overcome, supported by family, health partners, and researchers. With a focus on collaboration, SCAD Alliance has incorporated the many disciplines that play a role in researching spontaneous coronary artery dissection and caring for patients. We have crafted a team whose members are expert in the fields of cardiology, vascular disease, clinical psychology, connective tissue disorders, obstetrics/gynecology, endocrinology, and genetics. Founded in November 2013, our name says it all: SCAD Alliance.

Active Sites

  • Cleveland Clinic
  • Emory
  • Intermountain
  • Johns Hopkins
  • Kaiser
  • Mass General
  • Mt. Sinai
  • Ohio State
  • St. Lukes
  • University of Colorado
  • University of Michigan
  • UVA
  • Vanderbilt
  • Washington University
  • Columbia University
  • NYU Langone


Enrollment Update
As of November 27, 2017
Enrollmenticon.png
Enrolled Patients: 0
Sites Activated: 0
Save a Heart Infographic
SCAD infographic cover.PNG


SCAD in the News

SCAD Alliance
Medical News