Difference between revisions of "Main Page"

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<font size="+1"><center>[[PERFUSE SCAD Registry Portal Goals|Welcome! What are the goals of the iSCAD Registry Portal?]] ''By [[C. Michael Gibson, M.S., M.D.]]''</center></font>
 
<hr>
 
 
__NOTOC__
 
__NOTOC__
=='''REDCap Quick Links==
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[https://iscadregistry.bidmc.org/index.php?title=Special:UserLogin&returnto=UserHomepage If you are an Investigator, click here to log in!]
====[https://redcap.bidmc.harvard.edu/redcap/surveys/?s=XNXPD8RATX Screening Form]====
 
====[https://redcap.bidmc.harvard.edu/redcap/surveys/?s=NW7Y8N79LL Subject Discontinuation Form]====
 
====[https://redcap.bidmc.harvard.edu/redcap/surveys/?s=PETF84MHEF SCAD Recurrence Form]====
 
  
 +
=='''A Reminder to Investigators and Subjects Regarding Follow-Ups==
 +
A crucial part of the iSCAD Registry's study design is obtaining follow-up data in the form of questionnaires filled out by subjects and case report forms filled out by investigators. We ask subjects to please pay close attention to their inbox for emails regarding Follow-Up Questionnaires and recognize that these are different from the Baseline Questionnaires filled out at enrollment. For investigators, please maintain Follow-Up CRFs on each patient's individual timelines.
  
 +
=='''Mission Statement==
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The mission of the International SCAD Registry is to develop and maintain an independent, quality data repository to advance the pace and breadth of SCAD research around the world, toward the common goals of improving patient diagnosis and outcomes and accelerating scientific discovery.
  
<div style="margin: auto; margin-bottom:20px; background-color:#e4e4e4; border-radius:10px; padding-top:5px; padding-bottom:5px; padding-right:8px; padding-left:8px; overflow-x:auto;">
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=='''Vision Statement==
<center><span style="font-size:30px; padding-bottom:0px;">'''[[Enrollment Updates|Top Enrollers]]'''</span><br><span style="font-size:15px; padding-bottom:0px;">As of June 2, 2017</span></center>
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The vision of the International SCAD Registry is a robust collaboration of SCAD researchers around the globe who employ iSCAD’s continuously sourced, adequately powered data to assess outcomes and develop best practices and clinical guidelines for the ultimate goal of preventing SCAD or its recurrence.
<center>
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{| class="wikitable";
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=='''SCAD Alliance==
!style= "width: 180px; min-width: 180px; padding-left:15px; padding-right:15px; border:0px; text-align:center;"|[[Image:Blank3.png|140px|class=resize|link=]]
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SCAD Alliance is a unique organization with an integrated approach to the challenges facing spontaneous coronary artery dissection, or SCAD, patients and those who care about them. Our four-leaf “lucky” heart logo represents the torn artery we must overcome, supported by family, health partners, and researchers. With a focus on collaboration, SCAD Alliance has incorporated the many disciplines that play a role in researching spontaneous coronary artery dissection and caring for patients. We have crafted a team whose members are expert in the fields of cardiology, vascular disease, clinical psychology, connective tissue disorders, obstetrics/gynecology, endocrinology, and genetics. Founded in November 2013, our name says it all: SCAD Alliance.
!style= "width: 180px; min-width: 180px; padding-left:15px; padding-right:15px; border:0px; text-align:center;"|[[Image:Blank3.png|140px|class=resize|link=]]
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!style= "width: 180px; min-width: 180px; padding-left:15px; padding-right:15px; border:0px; text-align:center;"|[[Image:Blank3.png|140px|class=resize|link=]]
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[https://www.scadalliance.org/category/clinical-studies/ '''Click Here to Learn More About the iSCAD Registry on the SCAD Alliance Site''']
!style= "width: 180px; min-width: 180px; padding-left:15px; padding-right:15px; border:0px; text-align:center;"|[[Image:Blank3.png|140px|class=resize|link=]]
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!style= "width: 180px; min-width: 180px; padding-left:15px; padding-right:15px; border:0px; text-align:center;"|[[Image:Blank3.png|140px|class=resize|link=]]
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[https://www.youtube.com/channel/UCACIVevZCNi6_B6yM5wJ5tQ '''Click Here to View SCAD Alliance's Youtube Channel''']
|-
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!style= "padding-left:15px; padding-right:15px; border:0px; text-align:center;"|<span style="font-weight: 300;">'''Dr. Mauricio Concha'''</span>
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<br>
!style= "padding-left:15px; padding-right:15px; border:0px; text-align:center;"|<span style="font-weight: 300;">'''Dr. Daniel Pallin'''</span>
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<br>
!style= "padding-left:15px; padding-right:15px; border:0px; text-align:center;"|<span style="font-weight: 300;">'''Dr. Richard Hall'''</span>
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!style= "padding-left:15px; padding-right:15px; border:0px; text-align:center;"|<span style="font-weight: 300;">'''Dr. Carol Clark'''</span>
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=='''Active Sites==
!style= "padding-left:15px; padding-right:15px; border:0px; text-align:center;"|<span style="font-weight: 300;">'''Dr. Rishi Anand'''</span>
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<div style="column-count:2;-moz-column-count:2;-webkit-column-count:2">
|-
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* Vanderbilt
!style= "padding-left:15px; padding-right:15px; border:0px; text-align:center;"|<span style="font-weight: 300; color: #842627;">21 patients</span>
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* University of Kentucky
!style= "padding-left:15px; padding-right:15px; border:0px; text-align:center;"|<span style="font-weight: 300; color: #842627;">15 patients</span>
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* Washington University in St. Louis
!style= "padding-left:15px; padding-right:15px; border:0px; text-align:center;"|<span style="font-weight: 300; color: #842627;">15 patients</span>
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* University of Colorado
!style= "padding-left:15px; padding-right:15px; border:0px; text-align:center;"|<span style="font-weight: 300; color: #842627;">14 patients</span>
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* Mt. Sinai
!style= "padding-left:15px; padding-right:15px; border:0px; text-align:center;"|<span style="font-weight: 300; color: #842627;">10 patients</span>
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* Emory
|-
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* Dartmouth-Hitchcock
|-style="vertical-align:top;"
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* University of Pennsylvania
!style= "padding-left:15px; padding-right:15px; border:0px; text-align:center;"|<span style="font-weight: 300; font-size:14px;">Intercoastal Medical Group/Research, </span><span style="font-size:14px;">'''USA'''</span>
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* University Hospitals, Case Western
!style= "padding-left:15px; padding-right:15px; border:0px; text-align:center;"|<span style="font-weight: 300; font-size:14px;">Brigham and Women's Hospital, </span><span style="font-size:14px;">'''USA'''</span>
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* University of Virginia
!style= "padding-left:15px; padding-right:15px; border:0px; text-align:center;"|<span style="font-weight: 300; font-size:14px;">University Hospitals of North Midlands NHS Trust, </span><span style="font-size:14px;">'''United Kingdom'''</span>
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* St. Luke's Mid-America
!style= "padding-left:15px; padding-right:15px; border:0px; text-align:center;"|<span style="font-weight: 300; font-size:14px;">Beaumont Health System, </span><span style="font-size:14px;">'''USA'''</span>
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* Massachusetts General Hospital
!style= "padding-left:15px; padding-right:15px; border:0px; text-align:center;"|<span style="font-weight: 300; font-size:14px;">Holy Cross Hospital, </span><span style="font-size:14px;">'''USA'''</span>
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* Kaiser Permanente
|}
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* Providence St. Vincent
</center>
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* Intermountain
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* University of Texas Southwestern
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* Johns Hopkins Medicine
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* Columbia University Medical Center
 
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<center><span style="font-size:110%;">'''Enrollment Update'''</span><hr style="margin:0px;"><span style="font-size:15px; padding-bottom:0px;">As of November 27, 2017</span></center>
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<center><span style="font-size:110%;">'''Enrollment Update'''</span><hr style="margin:0px;"><span style="font-size:15px; padding-bottom:0px;">As of April 1, 2021</span></center>
 
<center>
 
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<div>[[Image:Enrollmenticon.png|170px|center|class=resize|link=Enrollment Updates]]</div>
 
<div>[[Image:Enrollmenticon.png|170px|center|class=resize|link=Enrollment Updates]]</div>
 
{| class="wikitable";
 
{| class="wikitable";
!style= "padding:0px; border:0px; text-align:left;"|'''Enrolled Patients:'''||<font color="#842627">'''0'''</font>
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!style= "padding:0px; border:0px; text-align:left;"|'''Enrolled Patients:'''||<font color="#842627">'''606'''</font>
 
|-
 
|-
!style= "padding-left:0px; padding-right:15px; border:0px; text-align:left;"|'''Sites Activated:'''||<font color="#842627">'''0'''</font>
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!style= "padding-left:0px; padding-right:15px; border:0px; text-align:left;"|'''Sites Activated:'''||<font color="#842627">'''18'''</font>
 
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<div style="text-align:center; background-color:#e4e4e4; border-top-right-radius:10px; border-top-left-radius:10px; padding-top:5px;"><font size="+1.5">'''Trial Videos'''</font>
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<div style="height:400px; background-color:#e4e4e4; border-bottom-right-radius:10px; border-bottom-left-radius:10px; padding-right:5px; padding-left:5px; overflow:auto; margin-bottom:20px; font-weight:bold;"  class="plainlinks">
 
{|
 
|-style="vertical-align:top;"
 
|style="border-style:solid; border-width: 0 0 1px 0; border-color:#BDBDBD;"|[[File:Gibson_Michael_circle.png|100px{{!}}link=]]
 
|style="border-style:solid; border-width: 0 0 1px 0; border-color:#BDBDBD;"|
 
[Dr. Michael Gibson presents: The Growing Importance of Missing Data and Patient Retention in Clinical Trials <br>(Part 1)]
 
<br><br>
 
[Dr. Michael Gibson presents: The Growing Importance of Missing Data and Patient Retention in Clinical Trials <br>(Part 2)]
 
<br><br>
 
[Dr. Michael Gibson presents: The Growing Importance of Missing Data and Patient Retention in Clinical Trials <br>(Part 3)]
 
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<center>{{#Widget:Abovethefold}}</center>
 
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Revision as of 13:45, 1 April 2021

If you are an Investigator, click here to log in!

A Reminder to Investigators and Subjects Regarding Follow-Ups

A crucial part of the iSCAD Registry's study design is obtaining follow-up data in the form of questionnaires filled out by subjects and case report forms filled out by investigators. We ask subjects to please pay close attention to their inbox for emails regarding Follow-Up Questionnaires and recognize that these are different from the Baseline Questionnaires filled out at enrollment. For investigators, please maintain Follow-Up CRFs on each patient's individual timelines.

Mission Statement

The mission of the International SCAD Registry is to develop and maintain an independent, quality data repository to advance the pace and breadth of SCAD research around the world, toward the common goals of improving patient diagnosis and outcomes and accelerating scientific discovery.

Vision Statement

The vision of the International SCAD Registry is a robust collaboration of SCAD researchers around the globe who employ iSCAD’s continuously sourced, adequately powered data to assess outcomes and develop best practices and clinical guidelines for the ultimate goal of preventing SCAD or its recurrence.

SCAD Alliance

SCAD Alliance is a unique organization with an integrated approach to the challenges facing spontaneous coronary artery dissection, or SCAD, patients and those who care about them. Our four-leaf “lucky” heart logo represents the torn artery we must overcome, supported by family, health partners, and researchers. With a focus on collaboration, SCAD Alliance has incorporated the many disciplines that play a role in researching spontaneous coronary artery dissection and caring for patients. We have crafted a team whose members are expert in the fields of cardiology, vascular disease, clinical psychology, connective tissue disorders, obstetrics/gynecology, endocrinology, and genetics. Founded in November 2013, our name says it all: SCAD Alliance.

Click Here to Learn More About the iSCAD Registry on the SCAD Alliance Site

Click Here to View SCAD Alliance's Youtube Channel



Active Sites

  • Vanderbilt
  • University of Kentucky
  • Washington University in St. Louis
  • University of Colorado
  • Mt. Sinai
  • Emory
  • Dartmouth-Hitchcock
  • University of Pennsylvania
  • University Hospitals, Case Western
  • University of Virginia
  • St. Luke's Mid-America
  • Massachusetts General Hospital
  • Kaiser Permanente
  • Providence St. Vincent
  • Intermountain
  • University of Texas Southwestern
  • Johns Hopkins Medicine
  • Columbia University Medical Center


Enrollment Update
As of April 1, 2021
Enrollmenticon.png
Enrolled Patients: 606
Sites Activated: 18
Save a Heart Infographic
SCAD infographic cover.PNG


SCAD in the News

SCAD Alliance
Medical News