Difference between revisions of "Main Page"

(117 intermediate revisions by 5 users not shown)
Line 1: Line 1:
<font size="+1"><center>[[PERFUSE SCAD Registry Portal Goals|Welcome! What are the goals of the iSCAD Registry Portal?]] ''By [[C. Michael Gibson, M.S., M.D.]]''</center></font>
<hr>
__NOTOC__
__NOTOC__
=='''REDCap Quick Links==
[https://iscadregistry.bidmc.org/index.php?title=Special:UserLogin&returnto=UserHomepage If you are an Investigator, click here to log in!]
====[https://redcap.bidmc.harvard.edu/redcap/surveys/?s=XNXPD8RATX Screening Form]====
====[https://redcap.bidmc.harvard.edu/redcap/surveys/?s=NW7Y8N79LL Subject Discontinuation Form]====
====[https://redcap.bidmc.harvard.edu/redcap/surveys/?s=PETF84MHEF SCAD Recurrence Form]====


<div style="margin: auto; margin-bottom:20px; background-color:#e4e4e4; border-radius:10px; padding-top:5px; padding-bottom:5px; padding-right:8px; padding-left:8px; overflow-x:auto;">
=='''A Reminder to Investigators and Subjects Regarding Follow-Ups==
<center><span style="font-size:30px; padding-bottom:0px;">'''[[Enrollment Updates|Top Enrollers]]'''</span><br><span style="font-size:15px; padding-bottom:0px;">As of June 2, 2017</span></center>
A crucial part of the iSCAD Registry's study design is obtaining follow-up data in the form of questionnaires filled out by subjects and case report forms filled out by investigators. We ask subjects to please pay close attention to their inbox for emails regarding Follow-Up Questionnaires and recognize that these are different from the Baseline Questionnaires filled out at enrollment. For investigators, please maintain Follow-Up CRFs on each patient's individual timelines.
<center>
 
{| class="wikitable";
=='''Mission Statement==
!style= "width: 180px; min-width: 180px; padding-left:15px; padding-right:15px; border:0px; text-align:center;"|[[Image:Blank3.png|140px|class=resize|link=]]
The mission of the International SCAD Registry is to develop and maintain an independent, quality data repository to advance the pace and breadth of SCAD research around the world, toward the common goals of improving patient diagnosis and outcomes and accelerating scientific discovery.
!style= "width: 180px; min-width: 180px; padding-left:15px; padding-right:15px; border:0px; text-align:center;"|[[Image:Blank3.png|140px|class=resize|link=]]
 
!style= "width: 180px; min-width: 180px; padding-left:15px; padding-right:15px; border:0px; text-align:center;"|[[Image:Blank3.png|140px|class=resize|link=]]
=='''Vision Statement==
!style= "width: 180px; min-width: 180px; padding-left:15px; padding-right:15px; border:0px; text-align:center;"|[[Image:Blank3.png|140px|class=resize|link=]]
The vision of the International SCAD Registry is a robust collaboration of SCAD researchers around the globe who employ iSCAD’s continuously sourced, adequately powered data to assess outcomes and develop best practices and clinical guidelines for the ultimate goal of preventing SCAD or its recurrence.
!style= "width: 180px; min-width: 180px; padding-left:15px; padding-right:15px; border:0px; text-align:center;"|[[Image:Blank3.png|140px|class=resize|link=]]
 
|-
=='''SCAD Alliance==
!style= "padding-left:15px; padding-right:15px; border:0px; text-align:center;"|<span style="font-weight: 300;">'''Dr. Mauricio Concha'''</span>
SCAD Alliance is a unique organization with an integrated approach to the challenges facing spontaneous coronary artery dissection, or SCAD, patients and those who care about them. Our four-leaf “lucky” heart logo represents the torn artery we must overcome, supported by family, health partners, and researchers. With a focus on collaboration, SCAD Alliance has incorporated the many disciplines that play a role in researching spontaneous coronary artery dissection and caring for patients. We have crafted a team whose members are expert in the fields of cardiology, vascular disease, clinical psychology, connective tissue disorders, obstetrics/gynecology, endocrinology, and genetics. Founded in November 2013, our name says it all: SCAD Alliance.
!style= "padding-left:15px; padding-right:15px; border:0px; text-align:center;"|<span style="font-weight: 300;">'''Dr. Daniel Pallin'''</span>
 
!style= "padding-left:15px; padding-right:15px; border:0px; text-align:center;"|<span style="font-weight: 300;">'''Dr. Richard Hall'''</span>
[https://www.scadalliance.org/category/clinical-studies/ '''Click Here to Learn More About the iSCAD Registry on the SCAD Alliance Site''']
!style= "padding-left:15px; padding-right:15px; border:0px; text-align:center;"|<span style="font-weight: 300;">'''Dr. Carol Clark'''</span>
 
!style= "padding-left:15px; padding-right:15px; border:0px; text-align:center;"|<span style="font-weight: 300;">'''Dr. Rishi Anand'''</span>
[https://www.youtube.com/channel/UCACIVevZCNi6_B6yM5wJ5tQ '''Click Here to View SCAD Alliance's Youtube Channel''']
|-
 
!style= "padding-left:15px; padding-right:15px; border:0px; text-align:center;"|<span style="font-weight: 300; color: #842627;">21 patients</span>
<br>
!style= "padding-left:15px; padding-right:15px; border:0px; text-align:center;"|<span style="font-weight: 300; color: #842627;">15 patients</span>
<br>
!style= "padding-left:15px; padding-right:15px; border:0px; text-align:center;"|<span style="font-weight: 300; color: #842627;">15 patients</span>
 
!style= "padding-left:15px; padding-right:15px; border:0px; text-align:center;"|<span style="font-weight: 300; color: #842627;">14 patients</span>
=='''Active Sites==
!style= "padding-left:15px; padding-right:15px; border:0px; text-align:center;"|<span style="font-weight: 300; color: #842627;">10 patients</span>
<div style="column-count:2;-moz-column-count:2;-webkit-column-count:2">
|-
* Vanderbilt
|-style="vertical-align:top;"
* University of Colorado
!style= "padding-left:15px; padding-right:15px; border:0px; text-align:center;"|<span style="font-weight: 300; font-size:14px;">Intercoastal Medical Group/Research, </span><span style="font-size:14px;">'''USA'''</span>
* Mt. Sinai
!style= "padding-left:15px; padding-right:15px; border:0px; text-align:center;"|<span style="font-weight: 300; font-size:14px;">Brigham and Women's Hospital, </span><span style="font-size:14px;">'''USA'''</span>
* Emory
!style= "padding-left:15px; padding-right:15px; border:0px; text-align:center;"|<span style="font-weight: 300; font-size:14px;">University Hospitals of North Midlands NHS Trust, </span><span style="font-size:14px;">'''United Kingdom'''</span>
* Dartmouth-Hitchcock
!style= "padding-left:15px; padding-right:15px; border:0px; text-align:center;"|<span style="font-weight: 300; font-size:14px;">Beaumont Health System, </span><span style="font-size:14px;">'''USA'''</span>
* University of Pennsylvania
!style= "padding-left:15px; padding-right:15px; border:0px; text-align:center;"|<span style="font-weight: 300; font-size:14px;">Holy Cross Hospital, </span><span style="font-size:14px;">'''USA'''</span>
* University Hospitals, Case Western
|}
* University of Virginia
</center>
* St. Luke's Mid-America
* Massachusetts General Hospital
* Kaiser Permanente
* Providence St. Vincent
* Intermountain
* University of Texas Southwestern
* Johns Hopkins Medicine
* Columbia University Medical Center
* Oklahoma Heart
* Catholic Medical Center
* UCLA
</div>
</div>


<div class="right" style="background-color:white;">
<div class="right" style="background-color:white;">
<div>
<div>
<div style="margin: auto; margin-bottom:20px; background-color:#e4e4e4; border-radius:10px; padding-top:5px; padding-bottom:5px; padding-right:8px; padding-left:8px;">
<div style="margin: auto; margin-bottom:20px; background-color:#e4e4e4; border-radius:10px; padding-top:5px; padding-bottom:5px; padding-right:8px; padding-left:8px;">
<center><span style="font-size:110%;">'''Enrollment Update'''</span><hr style="margin:0px;"><span style="font-size:15px; padding-bottom:0px;">As of November 27, 2017</span></center>
<center><span style="font-size:110%;">'''Enrollment Update'''</span><hr style="margin:0px;"><span style="font-size:15px; padding-bottom:0px;">As of September 1, 2022</span></center>
<center>
<center>
<div>[[Image:Enrollmenticon.png|170px|center|class=resize|link=Enrollment Updates]]</div>
<div>[[Image:Enrollmenticon.png|170px|center|class=resize|link=Enrollment Updates]]</div>
{| class="wikitable";
{| class="wikitable";
!style= "padding:0px; border:0px; text-align:left;"|'''Enrolled Patients:'''||<font color="#842627">'''0'''</font>
!style= "padding:0px; border:0px; text-align:left;"|'''Enrolled Patients:'''||<font color="#842627">'''1072'''</font>
|-
|-
!style= "padding-left:0px; padding-right:15px; border:0px; text-align:left;"|'''Sites Activated:'''||<font color="#842627">'''0'''</font>
!style= "padding-left:0px; padding-right:15px; border:0px; text-align:left;"|'''Sites Activated:'''||<font color="#842627">'''19'''</font>
|}
|}
</center>
</center>
Line 59: Line 65:
</div>
</div>


<div style="text-align:center; background-color:#e4e4e4; border-top-right-radius:10px; border-top-left-radius:10px; padding-top:5px;"><font size="+1.5">'''Trial Videos'''</font>
 
<hr style="margin:0px;">
</div>
<div style="height:400px; background-color:#e4e4e4; border-bottom-right-radius:10px; border-bottom-left-radius:10px; padding-right:5px; padding-left:5px; overflow:auto; margin-bottom:20px; font-weight:bold;"  class="plainlinks">
{|
|-style="vertical-align:top;"
|style="border-style:solid; border-width: 0 0 1px 0; border-color:#BDBDBD;"|[[File:Gibson_Michael_circle.png|100px{{!}}link=]]
|style="border-style:solid; border-width: 0 0 1px 0; border-color:#BDBDBD;"|
[Dr. Michael Gibson presents: The Growing Importance of Missing Data and Patient Retention in Clinical Trials <br>(Part 1)]
<br><br>
[Dr. Michael Gibson presents: The Growing Importance of Missing Data and Patient Retention in Clinical Trials <br>(Part 2)]
<br><br>
[Dr. Michael Gibson presents: The Growing Importance of Missing Data and Patient Retention in Clinical Trials <br>(Part 3)]
|}
</div>


</div>
</div>
Line 89: Line 81:
<hr style="margin:0px;">
<hr style="margin:0px;">
</div>
</div>
<div style="height:300px; background-color:#e4e4e4; border-bottom-right-radius:10px; border-bottom-left-radius:10px; padding-right:5px; padding-left:5px; overflow:hidden; margin-bottom:20px; text-align: left;">
<div style="height:300px; background-color:#e4e4e4; border-bottom-right-radius:10px; border-bottom-left-radius:10px; padding-right:5px; padding-left:5px; overflow:auto; margin-bottom:20px; text-align: left;">
<center>{{#Widget:SCADAlliance}}</center>
<center>{{#Widget:SCADAlliance}}</center>
</div>
</div>
Line 98: Line 90:
<div style="height:300px; background-color:#e4e4e4; border-bottom-right-radius:10px; border-bottom-left-radius:10px; padding-right:30px; padding-left:30px; overflow:hidden; margin-bottom:20px; text-align: left;">
<div style="height:300px; background-color:#e4e4e4; border-bottom-right-radius:10px; border-bottom-left-radius:10px; padding-right:30px; padding-left:30px; overflow:hidden; margin-bottom:20px; text-align: left;">
<center>{{#Widget:Abovethefold}}</center>
<center>{{#Widget:Abovethefold}}</center>
</div>
</div>
</div>

Revision as of 06:39, 6 September 2022

If you are an Investigator, click here to log in!

A Reminder to Investigators and Subjects Regarding Follow-Ups

A crucial part of the iSCAD Registry's study design is obtaining follow-up data in the form of questionnaires filled out by subjects and case report forms filled out by investigators. We ask subjects to please pay close attention to their inbox for emails regarding Follow-Up Questionnaires and recognize that these are different from the Baseline Questionnaires filled out at enrollment. For investigators, please maintain Follow-Up CRFs on each patient's individual timelines.

Mission Statement

The mission of the International SCAD Registry is to develop and maintain an independent, quality data repository to advance the pace and breadth of SCAD research around the world, toward the common goals of improving patient diagnosis and outcomes and accelerating scientific discovery.

Vision Statement

The vision of the International SCAD Registry is a robust collaboration of SCAD researchers around the globe who employ iSCAD’s continuously sourced, adequately powered data to assess outcomes and develop best practices and clinical guidelines for the ultimate goal of preventing SCAD or its recurrence.

SCAD Alliance

SCAD Alliance is a unique organization with an integrated approach to the challenges facing spontaneous coronary artery dissection, or SCAD, patients and those who care about them. Our four-leaf “lucky” heart logo represents the torn artery we must overcome, supported by family, health partners, and researchers. With a focus on collaboration, SCAD Alliance has incorporated the many disciplines that play a role in researching spontaneous coronary artery dissection and caring for patients. We have crafted a team whose members are expert in the fields of cardiology, vascular disease, clinical psychology, connective tissue disorders, obstetrics/gynecology, endocrinology, and genetics. Founded in November 2013, our name says it all: SCAD Alliance.

Click Here to Learn More About the iSCAD Registry on the SCAD Alliance Site

Click Here to View SCAD Alliance's Youtube Channel



Active Sites

  • Vanderbilt
  • University of Colorado
  • Mt. Sinai
  • Emory
  • Dartmouth-Hitchcock
  • University of Pennsylvania
  • University Hospitals, Case Western
  • University of Virginia
  • St. Luke's Mid-America
  • Massachusetts General Hospital
  • Kaiser Permanente
  • Providence St. Vincent
  • Intermountain
  • University of Texas Southwestern
  • Johns Hopkins Medicine
  • Columbia University Medical Center
  • Oklahoma Heart
  • Catholic Medical Center
  • UCLA


Enrollment Update
As of September 1, 2022
Enrollmenticon.png
Enrolled Patients: 1072
Sites Activated: 19
Save a Heart Infographic
SCAD infographic cover.PNG


SCAD in the News

SCAD Alliance
Medical News